Just been told i have it, anyone else??
What meds are you taking?
Apparently its a lot more unusual than an under active one.

Yep...join the club Liam

My TSH was negligable!!!!!!!!!

I was on Carbimazole for quite a long time, and beta blockers...the latter of which I was loathe to take as I have fairly low blood pressure, and asthma......

Have you had your anti-bodies checked?

Mine came back very interesting!......LOL
My TRab's were 10 times the upper limit of normal therefore a diagnosis of Graves disease.......and at the same time TPOabs of 10 times the upper limit of normal ..which usually equals Hashimotos........

I was treated as Graves, and then when the Endocronologists started scratching their heads when I suddenly went massively 'under' ..... I asked if it might be owt to do with the TPOabs......a look of astonishment and panic...a quick scan on his puter and a 'golly-gosh' errrm you have Hashitoxicosis....nope I can't tell you about that because my GP can't get his head around it either.........he says it is still Graves..with 'added bits'

Both the GP and Endoc had initially missed the TPOab result!

I was surprised at the initial diagnosis, as I had always been around the 8 stone in weight, and suddenly, for no reason, no change in diet, no reduction in exercise, I gained 2 stone rapidly...so I expected the TSH T3 and T4 to come back 'underactive', not massively 'overactive' ......

You are right...there are quite a few hypo-actives out there but not so many of us hyper-actives.

Us 'hypers' usually get sent to the 'Endocs' to finely tune our meds.....

Fozzie

Fonzie- couldn't it just be hashimoto's thyroiditis but where the antibodies where destroying the thyrioid cells liberating T3 and T4 into your blood stream (hence the low TSH) then when you ran out of thyroid gland to destroy your T4 levels plummeted.

Back to OP, the over-active thyroid is a lot less common than under though most people with an over-active thyroid end up with an under-active eventually. Treatments include carbimazole, radio-iodiine etc etc....

quote:

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Originally posted by BenB
Fonzie- couldn't it just be hashimoto's thyroiditis but where the antibodies where destroying the thyrioid cells liberating T3 and T4 into your blood stream (hence the low TSH) then when you ran out of thyroid gland to destroy your T4 levels plummeted.

Back to OP, the over-active thyroid is a lot less common than under though most people with an over-active thyroid end up with an under-active eventually. Treatments include carbimazole, radio-iodiine etc etc....

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Blimey, what a rough ride.
Normally hyperthyroidism is a bit more straightforward, the hypothroidism usually happens after RAI or huge doses of the carbimazole as you say....

I do like the "extras" excuse to explain away something which doesn't make sense though, I'll have to remember that one

Fozzie I think you should start following this route.

http://www.nhs.uk/chq/Pages/910.aspx

Wow wasn't expecting replies!!

I had been really worried that my lymphoma had come back as i have been having really bad sweats, fatigue and and gastro problems wehich is exactly how my lymphoma manifested. The tests and scans all came back normal. But i knew something was wrong, i hadn't slept in weeks.

Haematologist said she'd test for thyroid problems but was sure it wasn't that.

She rang yesterday to tell me to get to the GP asap

No one is happy to prescribe carbimazole as i am still less than a year out from a bone marrow transplant and i understand that carbimazole can affect bone marrow. I am on beta blockers from this morning with a trip to see the endo for an ultrasound soon and a follow upwith GP and blood test.

@Foxxie
I have my antibodies check at the various Haematology and Bone Marrow Clinics

Linky from googlebooks....

linky

Liam.......yes, you are right re the carbimazole.....whilst taking it, if you get a sore throat/mouth you have to stop taking it and get a blood test pdq (and test the white cell count), so, yes I can see why they don't want you to have it!

There is another called propylthiouracil, but I really don't know anything about that one, and for all I know, may give the same bone marrow/white cell problem....

When you go to your next haematology clinic, just confirm that they are/will test for the thyroid anti-bodies too.....
If you have only recently had your blood test (when they found the thyroid problem), it may be that they have tested, but the anti-body tests take quite a long time to come back....

Ian.......I have repeatedly asked for a second opinion, but my GP starts ranting on about my Endoc (whom he chose), I get miffed and remind him that I am the patient, who is 'suffering' and would he please carry his power struggle on with the Endoc and not me..by which time my patience has upped and gone, and the second opinion request is forgotten.... .... Next thing to do is find another GP who has space on his list......and isn't of the ilk of my current one.....

Ben.....you have restored my faith in GP's.....why are there so few of you good guys around?.......My GP admitted to me when I was first diagnosed that he was uncomfortable with hypers, as he wasn't that 'up' on it, so we made a pact that the responsibility would be 50/50 between us..which worked well, until I pointed out the TPOab result..it went rapidly down hill from there.

I tried to print out that extract, but it wont have it, not even on a highlight and copy/paste method......I would have given it to him, but no doubt he would have added it to his 'paper plane' collection..

Interestingly in that article, I have suffered since childhood from urticaria, mainly from man-made fibres and metals (not gold, silver or platinum).....it's all in my medical notes too... Thank you so much for finding that.....I have booked marked it, as it is a bit hard to read, and I will have to read it a few times to make sure I haven't misunderstood.....

Liam, let us know how you get on....

Fozzie

Fozzie- I've ctrl/prtscr and pasted it into paint and put in in my photo archive Us GPs can always do with some educating!! Very interesting re urticaria!! Guess it's a copy of Samter's immunologic disease for your Chrimbo present then!!

quote:

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Originally posted by BenB
Fozzie- I've ctrl/prtscr and pasted it into paint and put in in my photo archive Us GPs can always do with some educating!! Very interesting re urticaria!! Guess it's a copy of Samter's immunologic disease for your Chrimbo present then!!

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[quoteSamters for Chrimbo ?

Oooo no...... I just might scare meself !

Well I had an over active thyroid some 6 years back. Before I really realised what was going on, I had several really bad episodes culminating in me collapsing in my en-suite bathroom one night and my wife calling for an ambulance.

I took Carbimazole for 18 months and that luckily, to date, has sorted the hyper thyroidism out!

So, to all those having with the same condition, the treatment can work and make a significant difference!

u2u if you want to discuss anything!

[Edited on 19/9/09 by carpmart]

I have been suffering with this on and off for about 5 years, the first time I had an episode it cleared up with no treatment but the second time ( about 18 months ago) I was given carbimazol which did not agee with me and they gave me something else (which I can't remember the name of). I am clear atm but have been told that if it comes back the only treatment they will consider is the Radioactive Iodine, which I am not looking forward too.